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soula

I am an artist and creative director. For eight years chronic pain has consumed mine and my husband's life. BUT, I am now returning to my creativity with the assistance of modern day therapies. I'm using expression as a catharsis and coping mechanism and as a pathway for the restoration of my 'self'.

My Recent Follow up Appointment

Author:
Pain-Management-goodies

I’ve had loads of information to process after my recent appointment with pain specialist, Dr Nick Christelis.

To prevent you all from zoning out (and my backside from having a fit), how about I spread my pain management report out a little?

If you’re in a kind of ‘I can’t be bothered, I’m over it’ and ‘don’t want to hear any recommendations or my brain will burst’ state then here’s a special post for you – Diagnosis: A Can of Worms. 

And if you didn’t read how I prepared for my appointment please do so here because I’m about to reflect on it: Upcoming Appointment with my Pain Specialist

I’ll also be back to report on how I am going a few months down the track – sooner if something miraculous happens.

On arrival

It’s always great to see Dr Christelis and after my appointments I always feel very much relieved. There is such a huge psych component to having a specialist who understands you and your health issue. Continue Reading

Upcoming Appointment with my Pain Specialist

Author:

In just a few days I will be seeing Dr Christelis.

I’ve had one follow up appointment since my sacral stim implant.

It’s not that the stim has miraculously sorted my chronic pain issue, and not that I haven’t had a million symptoms to question, but I’ve come to learn that symptoms change alot. So I wait weeks, even months before deciding whether I need an appointment.

During this time a fair bit of info accumulates. I learn alot about my treatment and alot about how my body responds to it. It’s impossible to remember all this detail.

Thoughts I battle before an appointment are – how I’ll manage the car ride, my preference to be self managing, and that I’m sick of appointments. There is also the cost issue to take into account and that there are others who need these appointments also. A good pain specialist is busy.

Being conscious of the above, I’ve learned to manage appointments better. I plan for the appointment by using Pain Train to speak for me and remind me of everything I want to say.

Wanna see how I do this?

Continue Reading

Lady Gaga Battles Fibromyalgia

Author:
Lady-Gaga-Five-Foot-Two

Devastating about Lady Gaga. Chronic pain does not discriminate.

It’s not the way I’d prefer people to be educated. I would never want anyone to endure chronic pain but with news of Gaga’s cancelled tour people might believe that invisible pain can be this debilitating. It can leave you hospitalised and/or change your life so much that you no longer recognise it…

(Article from The Guardian Fibromyalgia: the chronic pain that thwarted Lady Gaga’s tour)

Continue Reading

Welcoming the biggest US beauty brand to Australia – Rodan + Fields

Author:

Who says injured workers and people with chronic health conditions can’t work?

Welcoming the biggest US beauty brand to Australia – Rodan + Fields.

Give me an opportunity to be involved with a company that doesn’t pride its business on photoshopped images, that embraces ageing, while also offering a business model that allows me to be involved within my health limitations… and I’ll be attempting it!

Continue Reading

Leader News: Prescription Drugs

Author:

(Moonee Valley Leader, Wednesday, September 6, 2017 Story by Carmel Green)

“We’re such a pill-popping nation – we’re taught to reach for the tablet and soldier on”

CONSCIOUS of her posture and sitting down for too long, artist Soula Mantalvanos would perch on a fit ball while working at her desk.

One day the ball burst and she fell on to the concrete floor, sparking more than a decade of pudendal nerve pain.

Prescribed opioid Tramadol and antidepressant Lovan, Ms Mantalvanos said at one point she was taking a cocktail of medications and, when the pain didn’t subside, her doctor doubled her dosages. Continue Reading

Men & Women: Pelvic Pain Relief + Your First PT Appointment w/ Dr. Susie G

Author:
FemFusion and Dr Susie Gronski

36 minutes of brilliant pelvic pain and awareness conversation with two very experienced professionals. Thank you Fem Fusion and Dr Susie Gronski.

Excerpt from Men & Women: Pelvic Pain Relief + Your First PT Appointment w/ Dr. Susie Gronski YouTube link – please read the warning about language used during this clip.

FemFusion Fitness
Published on 16 Aug 2017

Expert Interview with Dr. Susie Gronski, PT, DPT about DIY pelvic pain relief that you can start doing at home, PLUS what to expect from your first pelvic floor physical therapy appointment! The information provided in this video is for females and males. Continue Reading

Takes more than an app to explain pain

Author:

Body in Mind posted this excellent research from Marina Pinheiro and Gustavo Machado about the abundant health apps out there; What App is Good for My Back?

Pulse+IT also recently posted their story, There’s a bad app for That.

There are various purposes health apps are made. From where I’m standing, my app was never a promise to solve a health problem – that’s impossible.

I’ve been asked many times why Pain Train isn’t available as an app. Pain Train currently is fully functional as a website on any desktop or hand-held device.

The two main agendas of Pain Train, are: Continue Reading

Finnish Documentary Maker Seeks Real Life Stories

Author:

I’ve been contacted by Sarah Hudson, Media and Content Producer for Say What, a Finnish media company who is seeking to make a realistic documentary about Australians who are battling with opioids.

It’s an issue that requires serious address so please, if you are able to share your story to help reach others – no matter where they may be in the world – please read below and contact Sarah directly.

Finnish TV doco series Say What is visiting Australia and would like to cover some real life stories that go deeper than the shiny tourist images of Sydney.

They’d like to interview and spend some time with someone who is currently struggling with opioid dependency:

“We’d like to hear from you if you’re living that experience at present, or if you know someone who’s willing to share their story”

All correspondence is confidential.

Please email Sarah Hudson directly at ozmediasirkus@gmail.com

Who are Say What?

https://vimeo.com/162403297

password: sw2017

EPIc Women’s Retreat – Snow Mountain Range

Author:

Women’s Retreat for women living with pain

October 13th–15th 2017
YMCA Snow Mountain Ranch in Grand County, Colorado
1101 County Road 53, Granby, Colorado 80446

The next Women’s Retreat is in October 2017. There are only ten spots available and registrations are accepted based on availability.

The Women’s retreat provides experiential learning in a safe, serene, supportive and natural environment. Guests are free to be themselves, are heard and understood and are supported and encouraged in beautiful surroundings.

Continue Reading

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

Pain Train my online health record

Imagine your specialist knew this much before your first appointment…

Pain Train my online health record

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