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(Hardly) Happy 1st birthday pudendalnerve.com.au

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Well it’s hardly a birthday celebration! But certainly a time to reflect and assess myself and the achievements of PudendalNerve.com.au. The total visits in 12 months total an astounding 21,500 and the search terms are a clear indication that still, so little is understood of Pudendal Neuralgia worldwide.

The first note must be of thanks and of course, has to go to my husband Theo. Without Theo’s daily help this site simply wouldn’t be up and running…. neither would I!

Second note worthy thank you, and certainly something that can be celebrated, has to be the beautiful connections I’ve made in the past year. I’ve met the most inspiring, energising, kind, compassionate people, whether practitioners, therapists, chronic pain sufferers, or people attached to the pain system, you have been my encouragement and empathy. Your pain and/or knowledge inspire me to continue and get to the bottom of this dreaded pain issue in the hope of resolving it (and not just for my sake), and/or try to voice my improvements for an ignorant WorkCover system.

As far as my personal one year status goes, I definitely have ‘progress’ to celebrate; I’m running on Nerve block no. 3, refreshing my pelvis as required with a newly installed bidet, taking minimal amounts of Endep and in much less pain. Although I’m still much limited with capacity and rely on daily help and regular massage, I’m able to work a little from an accommodating home setup, thinking a lot more, delegating-delegating-delegating and finally, but not least, have taken a plunge into the wonderful world of Chinese Medicine which I believe may finally be able to reach my pain. Stay tuned for another update on that soon.

Nerve Block Cake & Candle

Here are some more specific, but also saddening, statistics that may be of interest to my subscribers and visitors (and my very loyal spies!):

Top country visitors:
Australia with 8,564 views
United States with 5,977 views
United Kingdom with 1,795 views

Top 10 posts:
Anatomical images
The Pudendal Neuralgia Masters
To block or not to block…
The way relief started
My list of practitioners
Physiotherapy at the Women’s
Males with Pudendal Neuralgia in Australia
The big bang injury
ABC 1 Catalyst: The Trouble with Sex
Now let’s get this straight…

Top search terms:
pudendal nerve / block / neuralgia / flare / entrapment / australia
dr thierry vancaillie, jacques beco pudendal nerve decompression
living with pudendal neuralgia
workcover victims diary

Saddest search terms:
can the pudendal nerve heal itself
can pudendal neuralgia go away
pudendal nerve help
pudendal nerve in men
can pudendal neuralgia be managed
coping with pudendal neuralgia
pudendal nerve depression
chronic pain accident compensation act 1985
pudendal neuralgia remission anyone
pudendal neuralgia disability
miracles in the cure of pudendal neuaralgia
pudendal nerve compensation
have nerve blocks worked for anyone with pudendal neuralgia
how do you know you have pudendal neuralgia and pudendal nerve
will pudendal nerve heal australia
pudendal nerve vibration feeling

The worst search term of all:
pudendal pain gonna kill myself

Onwards…

Thank you to all of you for reading and for your wonderful messages. Practitioners please keep your knowledge coming. I’m now off to write to Safe Work Australia regarding their ‘fair’ assessment approaches and the limitations of Independent medical examiners in the WorkCover system.

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1
  • Vanessa

    Congrats Soula! It doesn’t have to be a birthday celebration, but to celebrate all the hard work you put into this site, your desire to educate and change (WC) is simply astonishing and the compassion you have for yourself- to be able to look back and ‘see how far you’ve come’ is a gift (not stuck at anger, but more a let’s explore avenues).
    I think we all need each other for support and to try and change things so that the next ‘search engine field’ doesn’t have so many ‘pudendal pain gonna kill myself’ (I cried at that one-sooo been there!)….because women and men with this condition will have educated practitioners and get help faster,
    YOU ARE HELPING SO MANY SOULA- those stats prove it and you gotta be proud girl!!!
    Love to you and Theo for all your hard work (and for your cheery FB posts to me!)
    Enjoy your milestone day-you deserve to celebrate today!!!
    xx Vanessa

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

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