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Back to life

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Soula's Business Card Origin of Image

Soula's Business Card Origin of Image

Words… searching, searching… any second now… … … almost… actually, nope.., it’s not going to happen.  As if there’d be ANY words for me to explain how I feel writing this post. So please gear up with me, imagine the drum rolls and the biggest mountain you can imagine with me standing on the tippy top yelling because this IS real, IT’S true, IT’S official:

“I’M BACK AT WORK!!!!!!!”

No, I’ve not overdosed on my medication and the stress of a chronic pain issue has not damaged me enough to be hallucinating.., I. AM (wiggling heaps but all the same). SITTING. IN. A (very nice ergonomic). CHAIR. TYPING. THIS. POST!!!!

And, I definitely mean to sound excited. After all, I conquered a beast that came pretty close to defeating me and keeping me virtually still for the rest of my days (sadly I’ve not killed it completely but I’m still hopeful!).

It’s been 2,063 days since my ball went burst…

…or

5 years, 7 months, 23 days (including today)

…or

178,243,200 seconds

…or

2,970,720 minutes

…or

49,512 hours

…or

294 weeks (since I’m kindly rounding down but in reality pain calls for rounding UP).

I feel like… like… ME! And there isn’t a greater feeling.

For those in pain choosing to read on, sadly I have no quick remedy to report but I will continue to yap because those with Pudendal Neuralgia (PN) must know and learn there can be a resolution, a treatment and a return to a great quality of life. I don’t believe this was a miracle or my mum’s prayers (God love her and everyone else that prayed for me) but rather four essential ingredients: diagnosis, the right treatment, a divine partner and the chemistry in my brain that I was born with (now I do have to thank a parent there!). Yes there’s a lot of other herbs and spices to this recipe of (almost) cure, like love and support from friends, community and family, exercise, diet, distractions, the right aids etc etc but it all means nothing without the main ingredients. NOTHING.

I only hope now that I continue to improve with the pain sitting at lower levels and physical activity on the upper levels.

Now here’s my speech… (give me one more minute, this is a big deal!)… I’d like to thank my beautiful and most supportive life partner who’s own life was so affected during this time, Theo. I have to thank Lorimer Moseley who read three paragraphs in an email and directed me to the wonderful and most PN experienced physiotherapist (AFP I LOVE YOU), who diagnosed me in all of about 10 minutes and immediately flung me into heavenly pain relief, and last but so not least, Dr Peter Courtney for the best nerve block treatment in the most difficult place with the biggest needle…

I would also like NOT to thank the hellish and out-of-date WorkCover system for its primitive and narrow-minded approach to chronic pain. I’d like to NOT thank them for their lack of suitable treatment and all the obstacles like pathetic and useless appointments that they added to my pain pile sending me backwards not forwards. I would however like to thank the last psychiatrist they sent me to for describing me as tall.

And no, this website doesn’t end here. At over 11,000 visitors to date it will remain here for PN updates and information, and further personal updates. I still have a way to go til I get to full-time work and the removal of my implant!

I’ll be here if anyone needs anything: www.ooi.com.au and here: www.soula.com.au

Feedback

5
  • Who was the physio?

    I live in melbourne and am wondering who the physio is? I too have had the big needle from Peter Courtney.

    • admin

      Oh wow, how many \’big needles\’ have you had? i\’ve just had my third and waiting for it to kick in. It\’s slower than I expected, thought I\’d take off from my best state but sadly that hasn\’t happened. Two steps forward and one back I think. I still won\’t complain, I\’m up! Thank you for your comment, I\’ll email you shortly.

  • soula

    Don’t you know it workcovervictim! Thank you for your gorgeous words. You and your team were a great support for me as you are to so many other injured workers. You are in fact the only voice and the only support for injured workers. I hope to read your ‘back to life’ post soon. Cannot thank you enough for your help.

  • workcovervictim

    CONGRATULATIONS, Soula, you are such an inspiration to so many of us, injured workers! You are an amazing woman, a real battler with passion and I am in awe that you managed to return to work. Meant in a rather sarcastic way, I’d say be somehow grateful for WorkSafe Vic and their agent’s ignorance, their outdated “medical” repository, shonky insurance “doctors”, for ignoring your pleas and cries, for not helping you, for not caring for you during your horrendous time on the “system”, for they would most likely have disabled you, totally!

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

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